The Israeli Film Festival in Wollongong’s special cause
From Wollongong, Chloe Saxby was diagnosed with Vanishing White Matter disease (VWM) a genetic, degenerative, terminal disease that affects mostly children, in 2012 when she was three and a half.
Professor Orna Elroy-Stein, molecular biologist at Tel Aviv University is close to finding effective treatment for VWM. She has been working on VWM research for over 15 years: “I feel that pursuing a cure for Vanishing White Matter disease is my purpose in life. I don’t dare stop and let these people (children and families affected by VWM) down…I am totally committed to them, emotionally and professionally.”
The feature film is the adaptation of Amos Oz’s autobiographical novel, A Tale of Love and Darkness, directed by Natalie Portman. Also showing is the award-winning Wedding Doll, directed by Nitzan Glady.
All proceeds of the Film Festival will go the Australian registered charity, “Find a Cure for Chloe Saxby And Vanishing White Matter Disease“. The funds will directly support the research by Professor Orna Elroy-Stein.
The Embassy of Israel is paying the film rights. The distributors have given a generous discount. Spokesperson and cultural attaché of the Embassy of Israel, Dorit Herscovici, and Minister for the Illawarra, Gareth Ward, MP, will open the 16th Israeli Film Festival in Wollongong.
KEVA has set up a Mycause fundraising website for those who cannot attend the festival and would still like to donate to Chloe’s cause.
Tickets are $20 adults, $15 concession, www.trybooking.com/287518